18 Sep 2013 No Comments
Most stories that reach mainstream audiences about disability require the person to “overcome” it. You’ve seen the headlines: “Paralyzed bride walks down the aisle” or “Paralyzed student walks on graduation day.”
Stories like these deserve and should continue to be shared, but if those are the only stories we see in the media, we’re only seeing one portrayal of disability and we’re ignoring the diversity of disability experiences and perspectives.
Take paralysis as an example. Sure, some people would give anything to walk. Many go to great lengths to achieve it, and some even succeed. However, not everyone has the option to walk. Some don’t even want to walk.
If we only focus on stories where the main theme or victory involves overcoming a disability, we alienate people and families who embrace it proudly as a part of their identity and for whom a cure or remedy is not accessible. We deny their reality by not acknowledging it, perpetuating the idea that the only way to live with a disability is to erase it. This is not how I see my family’s experience.
My dad was paralyzed in a car accident when I was 12 years old. He’s lived without moving anything from the chest down or his fingers for the last 17 years.
My dad faces challenges related to his disability, that’s for sure, and our family endured a great deal of hardship when it first happened, but it does not mean that our lives ended that day. In fact, my dad lives a very fulfilling life as a wheelchair-user.
However, oftentimes when I share that my dad has a disability, many make assumptions about his life. Most often they are negative or limiting, but these people have most likely never seen an alternative that shows otherwise.
This gap in mainstream media hit me when I began sharing a story about my dad dancing for the first time in the 17 years since his accident to give me a father-daughter dance at my wedding. He loved dancing before he was paralyzed, and although he knew it was possible to dance in a wheelchair, he could never bring himself to do it. That lasted until he chose to honor my request for a dance at my wedding. Not only did my dad dance with me, but that one dance broke down a wall in him, and he didn’t leave the dance floor the rest of the night. Then he danced at a wedding two weeks later. He even took another dance lesson with my stepmom so he could learn more techniques.